Who Are The Experts, Really?

I was psyched for my second endocrinologist appointment. I know that might sound strange, but I had been sitting on a notebook full of diabetes-related questions and I was prepared to finally get my answers. Unfortunately, my appointment didn't go exactly how I had envisioned.


My doctor walked in smiling; praising me for the success I've had in bringing down my A1C. I think she was content to leave the appointment at this-- I'm seemingly doing well and there are no concerns on her end. However, I spend much of my time researching this disease, attending classes, and following other diabetic blogs. I had a lot of concerns and was shocked by her various responses.


The following sums up our visit:

• "What did you think of the class I referred you to?" Umm... it wasn't my cup of tea. The dietician gave blanketed advice, such as "one apple is equivalent to fifteen carbs", nevermind the size. She seemed agitated when I pulled out my dietary journal that specified everything I had consumed down to the smallest number. And to top it off, all of the patients were looking for someone to hold their hand through all aspects of their lives-- I feel like these people need to take their health into their own hands. "Wow. I guess we should attend the classes we are sending people to, huh? But, it is probably because you are a very intelligent patient and you represent a small number of people." Okay, but then there should be classes that go beyond Diabetes 101.
• I was never tested for a vitamin D deficiency. Isn't this important to know in regards to insulin sensitivity? "Um, yeah, we can test for that if you want to."
• Great. Can we also test for celiac disease? I've been exhibiting many of the symptoms for some time now and seeing how it is linked to type 1 diabetes..."Celiac disease? What kind of test is used to determine that?" Umm... it's a blood draw. Really?
• Can you please tell me a little bit about the Dead in Bed Syndrome? I've had difficulty sleeping after I learned about various cases. "What is that?" [insert my explanation]
• I've been experiencing numerous lows. Do you think I should pull back on my long-lasting insulin? "Uh... yeah, you can do that. Why don't you try seven units and you be the judge of how much short-acting insulin is necessary." Of course.
• So, is there anything I should know about traveling? "I can write you a short note to say you have diabetes and that you are authorized to carry supplies." I actually already have a letter prepared for you. "Wow. This is really good. Can I copy it?"

I walked out in a daze. What just happened? Who was educating who? I believe this woman to be very knowledgeable and a good doctor. However, she might not be the best doctor for me. Somehow I seem to have surpassed her knowledge of diabetes. I need to know that my doctor has a firm grasp on what I am going through and that they are giving me the best care possible. Otherwise, what am I paying for? I could WebMD my way through life and not pay a dime (not that I would ever choose to).

I know that I am an extremely engaged patient, but shouldn't we all be? My parents taught me to take action and be informed when it comes to my health. After all, as patients, we are our own biggest advocates.